Pregnancy is something that many women with endometriosis may have thought about or experienced, because endometriosis often first affects women when they are of childbearing age. There is evidence that having endometriosis may affect your fertility and suggests that endometriosis can lead to complications during pregnancy.1–4 However, being pregnant can improve the symptoms of endometriosis5 and is often a time of celebration and joy, in addition to the usual maternal concern for the health of your baby.
In many women, pregnancy does not make the symptoms of endometriosis worse.
In fact, some women find that their endometriosis symptoms improve during pregnancy.5 However, this improvement is often temporary, and the symptoms of endometriosis will likely come back after pregnancy or breastfeeding.5
In some cases, pain can worsen due to the extra pressure of the uterus on nerves or areas with existing endometrial tissue.6
All pregnant women are advised to think carefully about any substances (e.g. foods, drinks, and medications) they put into their body. This is because some substances can move from the mother’s bloodstream directly to the baby’s bloodstream (through the placenta). It is unlikely that you will be receiving any treatment for endometriosis during your pregnancy, but this would be a decision between you and your doctor.
In many cases, when a woman receives a medication, the effect of that medication on the health of her baby is often not known. This is because pregnant women are often prohibited from participating in studies that test potential new medications. However, pregnancy registries are studies designed to potentially help healthcare providers learn more about medications and their effects on babies. The aim is to gather information that will help women and their healthcare providers make informed decisions in the future about their medication use before or during pregnancy.
In some cases, women do not yet know that they are pregnant when taking medication. Sharing your pregnancy information with this registry could help provide information as to whether taking Orilissa® (elagolix) early in pregnancy could have an effect on the pregnancy or the health of the baby. It is not known at this time if Orilissa could harm your unborn baby. Orilissa is not approved for use in pregnancy, and women are advised to stop taking it immediately if they become pregnant.
Learn about the BLOOM Pregnancy Registry here.
Your own healthcare provider should be the first source of information for you about your pregnancy and endometriosis. In addition, there are endometriosis patient advocacy groups where you can seek information from people who may have experience with endometriosis and pregnancy. Your healthcare provider may be able to help you contact a group that is active in your local area.
By clicking through the website, we understand this means you have accepted our cookies.